Cystic Fibrosis Awareness Month 2021 Age? 2 years 3 months Tell us about your CF story! Hi! I’m Aiden. I’m 2 years old & was diagnosed with CF at 12 days old after abnormal findings on my newborn screening. A sweat test confirmed I did indeed have CF & from there I would start all […]
Patient Testimonials
Tube Feeding Awareness Week 2021 How old are you? 3 What would you want others to know about tube feeding and/or your diagnosis? It’s ok to be fed by tube you’ll still grow up big and strong What makes you happy? Watching SpongeBob and playing on my slide. What does tube feeding mean to you? How […]
Tube Feeding Awareness Week 2021 How old are you? 16 months What would you want others to know about tube feeding and/or your diagnosis? I have Down Syndrome and I was born with a heart defect. Since I was born, I did not have enough energy and strength to eat on my own. I tried […]
Tube Feeding Awareness Week 2021 How old are you? 7 months old! What would you want others to know about tube feeding and/or your diagnosis? Being tube fed does not make me abnormal! It just means I eat a little different than you! What makes you happy? Being with my mommy and my twin sister makes […]
Cystic Fibrosis Awareness Month 2021 Age? 18 Tell us about your CF story! During my childhood I was always a healthy kid. We never thought my journey was coming for me. I wasn’t diagnosed until 13 years old. They did genetic testing because I was having pancreatitis without any available reason. We were all shocked. […]
Autism Acceptance Month 2021 Age? 3 Tell us about yourself! I’m a stay at home mom of 2 daughter is 6 and my son is 4 with autism. He is a sweet little boy, he stays to himself most of the time and looooves his tablet. His favorite foods are peanut butter sandwiches, sour cream […]
Tube Feeding Awareness Week 2021 How old are you? 10 years old What would you want others to know about tube feeding and/or your diagnosis? Tube feeding is keeping me alive, it’s the only way I can get my nutrition. Only god knows of my future. What makes you happy? Attention! being loved by my loved […]
Cystic Fibrosis Awareness Month Age? 7 Tell us about your CF story! Although she has CF, you can’t really tell. Marian was diagnosed with CF at 10 months of age. She is a bright and energetic kid that loves to draw, go outside to the park, ride her scooter and visit with friends and cousins. […]
Tube Feeding Awareness Week 2021 How old are you? 11 What would you want others to know about tube feeding and/or your diagnosis? Tube feeding moved Ramont from failure to thrive to a healthy weight. He really likes the chocolate flavor Kate’s Farms. Their organic formula has also helped the constant constipation issues he has […]
Tube Feeding Awareness Week 2021 How old are you? 7 What would you want others to know about tube feeding and/or your diagnosis? Sam was diagnosed with an intestinal dysmotility disorder; due to that, he is not able to digest food properly. Tube feedings have saved Sam’s life and has allowed him to be able […]
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